Baby Jaxon, Born With Anencephaly, Defies the Odds, Turns 1 Year Old

National   |   Sarah Zagorski   |   Sep 28, 2015   |   1:14PM   |   Washington, DC

In 2014, baby Jaxon was born to Brandon and Brittany Buell in Massachusetts. However, before he was born he was diagnosed prenatally with a very rare condition and doctors advised the couple to abort him at 23-weeks. Thankfully, they refused and decided to leave their son’s life in God’s hands. The Daily Mail reports that Brandon and Brittany are devout Christians and were against abortion from the beginning.

Unfortunately, people have questioned their decision to keep Jaxon but Brandon responded to his son’s criticizers on Facebook. He said, “It was our choice, and only our choice. Jaxon was our baby, and we only had one shot to do everything we could for him.” He added that they didn’t want to “play God” even though they were told Jaxon would never live a normal life.

Brittany said, “It’s normal to look at Jaxon and see a perfectly created boy and other babies truly do look weird and oversized to us. And, it’s normal to take Jaxon in public and always feel the looks, the stares, and the glances, usually from people that don’t even realize that they’re doing it.”

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As LifeNews previously reported, doctors told Brandon and Brittany the following about Jaxon’s future: “They told us he wouldn’t hear, see, or have any senses. He wouldn’t tell us he was hungry. He may not do any of life’s normal luxuries. Early on it was very tough for us. It was tough not knowing what we were gonna get and we could lose him at any time.”

Now Jaxon has just celebrated his first birthday and making strides doctors believed he would never make. Brandon said, “They told us he wouldn’t be able to crawl or walk or talk. But we’ll put him on his left side and he’ll roll to his right side. He gets on his hands and knees for a minute. He’s already stronger than we ever thought.”

After he was born, Jaxon was officially diagnosed with Lissencephaly, which is a condition that causes the brain to have folds that it shouldn’t. The couple said the following about their son’s birthday on social media: “Today is a miracle, in and of itself, that through everything Jaxon has already been through, through his diagnosis, by the doubts of several medical teams, and with his perceived prognosis, he is still here, strong as ever, only dependent on a feeding tube, and can hear, see, talk, smile, laugh, and is learning more every day, even how to say ‘Mama’ and ‘Dadda’ directly to us.”

Although Jaxon has been uncomfortable because of his condition, he is starting testing to find out more about what is causing it. His parents explained, “The frustration continues because obviously something is going on, but how do we find it, and how do we fix it? One day at a time still for our family. Our baby boy remains strong as ever to be dealing with all of this every day yet still loves to cuddle with Mommy and Daddy as much as possible.”

Additionally, his parents believe those who have read their story have misunderstood Jaxon’s condition. Brandon explained, “There are cases of Microhydranencephaly children who have lived into their 30s, have lived relatively normal lives, can learn to swim, and have and can use their senses, as well.”

Currently, Brandon and Brittany are seeking care for Jaxon at Boston’s Children’s Hospital and have been meeting with their top neurologists. In fact, Live Action News reports that Jaxon will be meeting with two more neurologists this week who are specialists in epilepsy and neurological disorders. Brandon and Brittany will also visit with a gastroenterologist to learn more about their options for feeding Jaxon since he has been receiving nourishment through a feeding tube.

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