Jude Peters celebrated a milestone birthday on Sunday, but his first birthday was unlike those of most children. To understand the importance of Jude’s birthday and bing it into context, consider what happened a few years ago. As Christina Martin wrote at LifeNews:
On August 11, 2013 Hannah Katelyn Peters experienced the most unforgettable moment of her life. That late summer day, Hannah and her husband Sully fell in love all over again. That love came in the form of a precious boy named Jude. A boy who was born with a condition called Rhizomelic Chondrodysplasia Punctata, a lethal form of skeletal dysplasia.
In her blog ‘Raising Jude’, Hannah tells of the challenges and joys she’s encountered through pregnancy and the birth of her son. In an entry Hannah shares the words she once spoke to her sister, words that would later prove to be prophetic.
‘I was at breakfast with my sister and her boyfriend and I was telling them that I had a huge heart for children with special needs, challenges, illnesses and disabilities. I was telling them that I wish I had the finances and the resources to adopt those children and to give them a life filled with love and happiness’.
A week after that conversation, Hannah received an alarming prognosis about her pregnancy. The tension escalated when a doctor encouraged her to abort. In her own words she said, ‘Early on in my pregnancy they started to see all the signs that Jude had a form of skeletal dysplasia. From then on, I was strongly encouraged to terminate and try again. I was told things such as “you’re young, you can just try again”, “what quality of life do you think this baby will have?”, “do you really want to make this baby live like this?”, “this is not your normal baby.”
In great emotional turmoil Hannah came to a realization that God chose her to be her child’s mommy. She trusted God knew her heart could handle it and that she would love her baby regardless of the challenges. Hannah and her husband Sully believed God specifically selected them to parent Jude. In a post called, ‘I Chose Life’ Hannah declares, ‘I am so grateful that I was one of the mothers who said no to the doctors and chose to give this innocent baby a chance at LIFE..every baby deserves a chance at life.’
Now, little Jude is celebrating a birthday some children in his position may never have seen:
Any birthday is special for a young boy, but to Jude’s family, his birthday seemed more like a miracle.
Jude Peters has a rare disease that is almost always deadly and his family just got to celebrate his first birthday.
You would think talking about a rare disease would be enough to damper any day, that certainly wasn’t the case at Jude’s birthday party Saturday.
Jude’s father said Saturday was “pretty significant.” Especially since about a year ago Sullivan Peters was afraid his son would not live outside of the womb.
Just days after Jude Peters was brought into this world, his parents got the news of his rare condition. Their bundle of joy is diagnosed with Rhizomelic Chondrodysplasia Punctata (RCDP). Something many of you have never heard of and there’s a good reason why.
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Heather Anderson says “there’s about 53 cases right now worldwide.” Her son Justice, is one of those 53.
Jude’s parents are desperately looking for a cure for his condition and, while there is no cure, there is some promising research out of the country.
“Pharmaceutical companies are not jumping on the boat to help 53 kids, so what we are looking for is a donor,” Jude’s grandmother Darla Collins said.
Until that day comes, they will enjoy every second they can spend with their miracle children.
“We have a little fighter a little warrior, a little warrior,” Collins said. “And we are going to fight with him the entire way.”
The couple has come far since first hearing the news of Jude’s condition. They are a strong team working together to care for their son. Since Jude’s birth people have told Hannah that he may not make it through infancy. They’ve asked her if she’s prepared herself for that. She bravely spent months pondering that reality. Jude has a cartilage deficiency, his shoulders and hips are out of place and he had congenital cataracts, before a successful surgery removed them.
According to an MRI Jude has a spinal cord tether, spinal stenosis and an unstable neck. He is currently in speech, physical and occupational therapy weekly with a great medical team. Even with those challenges a smile is still found on his little face. He’s already beaten the odds and done the opposite of what doctors imagined. It’s no wonder his family and friends call him the ‘Brave Little Warrior’.
In an entry titled, ‘No Expiration Date’ Hannah writes:
Jude may have some issues that require extra attention and he may deal with pain from time to time. But Jude is here, he is breathing, he is fighting and he will continue to fight.
So I don’t look at Jude and see his disorder, I will not find his identity in that. I look at Jude and I see a Brave Little Warrior. I will not put an expiration date on my baby. And I am so proud that he has already far beaten the ones that medical professionals tried to put on him.
I know that God is the ultimate physician; no earthly man can tell me what is going to happen. Jude has proved to be a fighter and I will continue to fight for and with him and give him anything he needs.
So no, I am not preparing for the worst. I am praising God for the best that I have already seen.
I will praise him because Jude is fearfully and wonderfully made.