At a time when the world is debating the startling remarks from Richard Dawkins urging parents of babies with Down syndrome to have abortions, one mother of a disabled child says she has absolutely no regrets about rejecting one.
Here is a little boy who has a significant medical problem that may prompt other parents to take his life instead of proving him with special love and care. Louis Mathurin was diagnosed with bent bone dysplasia while in the womb.
Doctors offered his mother Nina, an abortion on medical grounds but she refused, determined to give her son a chance at life. Louis suffers breathing problems and difficulty eating but she is prepared to take on those challenges because she believes her son has a right to life.
She said: ‘I felt instant love… I felt a powerful sense of protectiveness.”
“‘Every bone in his body is malformed. It affects everything – from his mobility to his breathing,” Nina added — but that is not stopping her from taking care of Louis.
The 41-year-old now volunteers at Great Ormond Street Hospital helping other parents facing difficult decisions about their child’s care.
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Little Louis Mathurin smiles through every day, despite suffering an extremely rare condition which has left every bone in his body malformed.
His mother Nina said despite her son’s disfigurement, she does not regret having him after doctors offered her an abortion on medical grounds.
The 41-year-old, said: ‘When I first saw him I noticed his head was severely misshapen. My first reaction was that he looked like an alien.
‘I felt instant love. I didn’t care in the slightest what he looked like – I just wanted him to be well. I felt a powerful sense of protectiveness from the very first moment.’
By her 24th week of pregnancy, Ms Mathurin was suffering acute anxiety and doctors had made the decision to offer her a termination on account of her unborn son’s apparent disfigurement.
Ms Mathurin said: ‘They offered me a termination on medical grounds – but I didn’t really know on what basis I would be making the decision.
‘I got a second opinion, and the most conclusive observation was that Louis was going to be short. That was enough for me to decide – I wasn’t going to have an abortion on that basis alone.
‘I was fiercely protective over him even though he hadn’t arrived yet. I wanted to do everything I could.’
Louis was born two months prematurely on November 18, 2011. The delivery room was filled with 15 medical staff as Ms Mathurin gave birth.