Two-month-old baby De Sean from Oregon was born with a condition called split-hand split-foot malformation that melds his fingers and toes together. In fact, his case is so severe that it only affects one in a million births. His grandmother, Evelyn Ellis, has now launched a campaign to raise money for his surgeries, genetic testing and care he’ll need afterwards.
Split-hand/split-foot malformation is a rare limb malformation with median clefts of the hands and feet. Split-hand/split-foot malformation, also known as “lobster claw hand,” is a limb malformation. The hands and feet of people with ectrodactyly are often described as “claw-like” and may include only the thumb and one finger (usually either the little finger, ring finger, or a syndactyly of the two) with similar abnormalities of the feet.
The family is hoping they can raise enough money on the fundraising website, which has already reached $5,000. Some of the costs will be covered by Shriners Hospital for Children, but the family will be left to foot the bill for further tests, as well as travel expenses.
His parents both work full time – 28-year-old De Andre at a bank and 25-year-old Seanna at a hospital – but Ellis predicts that they will have to take leaves of absence from work.
‘The only way he’s going to thrive is in the arms of his mom,’ Ellis said. ‘There’s no way she can work full time and look after an infant as he goes through all of these surgeries.’
An Oregon family are appealing for help after their baby boy was born with webbed fingers and toes.
Baby De Sean’s grandmother, Evelyn Ellis, is behind a GoFundMe page to raise at least $10,000 for the two-month-old’s much-needed reconstructive surgery and the support he’ll need as he heals.
De Sean was born with a rare condition that melds his fingers and toes together called split-hand split-foot malformation. It means that he is missing some digits, while others are fused together.
Both of his hands and feet are affected, which doctors told the family only happens in one in a million cases.
‘When my daughter heard that, she cried: “My baby boy is one in a million!”,’ Ellis told MailOnline, laughing. ‘They could not be more happy with their son. We would not trade him for the world.’